If they prescribe me medication that does not have a generic form...

I have to forfeit that medication. I don't know what it feels like to be out of pain, because I live with it every day.
Sometimes I decide whether I'm going to get medication or pay my electric bill.
An electric bill weighs on me a little bit more because I don't want to be in the dark. If my doctor prescribes medication that does not have a generic form I have to forfeit that medication. I don't know what it feels like to be out of pain, because I live with it every day.
Myra M.
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My drugs are so expensive...

most times it is pay the bills or get my medications.
My drugs are so expensive, I have to choose which ones are most important and that is what I will get.
Most days it is pay the bills or get my medications. I dose them out, so I can afford them (which is not how my doctor prescribed them). All of this increases my stress and sends me into another flare. The same can be said for over the counter medications. I was a nurse for 30 years and thought I had seen it all. I was so wrong then!
Rosemary P.
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Our medications are so expensive...

that I must choose between my son receiving his treatment or myself. Ultimately, that is no choice at all. My child always comes first.”
Accessing health care is a constant struggle for my family.

My son has special needs and I have a rare, painful disease that deforms my hands and feet. Although I have worked full-time for over 20 years, our medications are so expensive that I must choose between my son receiving his treatment or myself. Ultimately, that is no choice at all. My child always comes first.

It is ridiculous that throughout the month, I ration or stop taking the eight different medications that keep my hands functioning well enough to tuck my son in at night. It is unacceptable that my health and mobility are declining, threatening my job and my ability to care for my child. My health affects my son’s and my son’s affects my family’s, everyone suffering all because a company wants more money.

Why is this happening? Why are the medications so expensive?

Rochelle D., California
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Six years ago, I began cutting doses of four non-generics for diabetes in half or not refilling.

My husband and I shop frugally, and there's nowhere else to cut.
Six years ago, I began cutting doses of four non-generics for diabetes in half or not refilling
in order to afford four Tier 4 scripts. I don't have to remind anyone with diabetes on Medicare the obscene costs of brand name insulin and oral medications. My husband and I shop frugally, and there's nowhere else to cut.
Jo C.

Since 1998, I have taken a generic medication.

Over the years, the medication went from $5 to $10 a month and then suddenly, in 2015, it went to over $250 per month.
Since 1998, I have taken a generic medication. I was put on Corgard® (Nadolol).
Over the years, the medication went from $5 to $10 a month and then suddenly, in 2015, it went to over $250 per month. That did not include what insurance covered. I have never been able to get a straight answer from the manufacturer. As I work for a hard-working family practice doctor, I have seen it all, and this is only one of many such issues.
Diane G.

Every year when my health insurance deductible resets, I stop my treatments

because my child has asthma and his ability to breathe is more important than my ability to walk.
Every year when my health insurance deductible resets, I stop my treatments
for neuropathy and chronic pain because my child has asthma. His ability to breathe with the help of five daily medications is more important than my ability to walk.
@Mama_Mandria

My doctor wanted me on an inhalant. It was $276.

No freaking way I could afford it. This is WITH insurance.
My doctor wanted me on an inhalant.
Okay, I went to get it filled and gave it right back to the pharmacy. It was $276. No freaking way I could afford it. This is WITH insurance. I can’t take the medication and sacrifice paying my other bills.
Dianne J.

I have to use an inhaler to breathe.

I just ordered a three-month supply that cost me $571.35. That is over half of my income.
I have to use an inhaler to breathe.
I just ordered a three-month supply that cost me $571.35. I have hit the Medicare coverage gap and it isn't even a full three months into the year. That is over half of my income. That is the price with insurance. What am I supposed to do if I can’t breathe?
Patsy A.

I cannot afford $30,000/ year.

I am now without the medication that has been so effective.
Statistically, I should be in a wheelchair by now,
but with a lot of self-care and discipline, hard work and compliance with my medication and exercise, I am doing well. I've had multiple sclerosis a long time! I work part time, volunteer when I can and keep a positive spirit. I take one medication and it is to prevent the MS from worsening. My insurance pays most of it, but my co-pay is $2,500/month. I've been getting "extra help" for the copay through Social Security since my copay cost is more than my entire income. But, I just took my last dose. I was notified that I am no longer getting the assistance for the copay. I cannot afford $30,000/ year in copay. A nursing home would cost a lot more. I am now without the medication that has been so effective and am really worried.
Anna Beth A.

My family watched as I grew sicker.

I am someone’s daughter, sister, best friend, and neighbor, and we all suffered because I couldn’t afford the health care I needed.”
I am from a small town. I never had a lot of money, but I was content with life.

I worked hard and lived within my means. Then, I was diagnosed with liver disease.

I went from walking six miles a day to sleeping constantly. My doctor found a cocktail of medications that helped. But, my prescriptions were $1,900 a month, not counting doctor’s visits. Liver pills alone were around $500. This left me only $5 at the end of every two weeks for food and gas.

Eventually, I had to stop treatment to make ends meet. My family watched as I grew sicker. It wasn’t until I qualified for assistance that things started to turn around, but my body went through irreversible damage from the lapse in treatment.

I am someone’s daughter, sister, best friend, and neighbor, and we all suffered because I couldn’t afford the health care I needed.

Anna M., Missouri

But then the price went up. Way up.

When I switched to Medicare the cost became $10,000 a year. That was $2,000 for a single prescription.”
I have severe Rheumatoid Arthritis.

Luckily, I discovered Humira, a shot that could keep down inflammation and ease my bone deterioration. I received Humira for $5, with insurance. With my pain managed, I could spend time with my family and friends, my arthritis no longer dominating my life.

But then the price went up. Way up.

When I switched to Medicare, the cost became $10,000 a year. That was $2,000 for a single prescription or a $1,995 difference between insurers. How is that possible?

I wrote the manufacturer, applied for assistance, but nothing worked, so I stopped taking the drug. My bones became weak and crippled. My life was no longer my own and to this day, I still don’t know why. 

Bonnie O., Connecticut